Jeanne is a registered nurse and the founder of the Gastroparesis and Dysmotilities Association. She found herself with no place to turn for help when her two children developed delayed gastric emptying after drinking contaminated tap water from their local ski hill.
Skiing and vacations were soon out of the question as Jeanne’s two children settled into chronic debilitating nausea and periodic vomiting. With the formerly active children now housebound, it took two years of endless doctor appointments for the children to be correctly diagnosed with idiopathic gastroparesis. Having a diagnosis was of little help since the availability of effective treatments at the time proved minimal.
Through scientific meetings organized by the Gastroparesis and Dysmotilities Association, Jeanne met the inventor of gastric electrical stimulation (GES) therapy. The device has a humanitarian device exemption from the U.S. FDA for the treatment of nausea and vomiting related to gastroparesis. It is still an experimental treatment in adolescents under 18 years of age. At the time, Jeanne’s children were the youngest children to be implanted with GES. After being implanted with the device, life turn back to typical activities. Her daughter continued her education to pursue her dream of a Broadway musical career, while her son returned to high school to complete his degree.
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