ALS or Lou Gehrig’s disease
Before searching the technology listing, check out the commentary about neurotech and ALS. This quick and simple read can be found here.
CONSIDERATIONS
There are a variety of applications which are listed below. Prior to considering any new therapy, treatment, or device, a proper evaluation should be conducted by a knowledgeable medical professional. There are health, medical and financial risks. Out-of-pocket costs and available insurance coverage for any treatment must be considered prior to starting a protocol. Finally, this is an evolving field of science and technology development this page is updated on a periodic basis.
Also, it is vital to understand that results and applications will vary depending on symptom and function limitations related to the disease. This is mainly due to long-term periods of lower motor neuron degeneration and flaccid paralysis. If you find something of interest, please contact the vendor directly to find a trained professional in your area.
Technology Listing
Support Groups & Resources
ALS Association: A national non-profit organization fighting Lou Gehrig’s Disease through global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships.
Team Gleason: This is a non-profit organization that Steve and his wife Michel founded to empower people with ALS to live purposeful lives. They offer diverse and broad-reaching programming, brings assistive technology, equipment, and robust support services into the hands of ALS patients.
I AM ALS: Founded by ALS patient Brian Wallach and his wife, Sandra Abrevaya, I AM ALS is revolutionizing how we cure ALS by empowering and mobilizing patients, engaging with policy-makers, and offering vital resources for people impacted by ALS.
ALS Therapy Development Institute: A nonprofit biotechnology organization dedicated to developing effective treatments for ALS.
International Alliance of ALS/MNS Organizations: An international community for individual ALS/MND associations to share resources globally, advance awareness, and support people with ALS/MND worldwide.
Les Turner ALS Foundation: A foundation focused on research, patient care, and education about ALS.
Project ALS: This non-profit organization identifies and funds the most promising scientific research that will lead to the first effective treatments and a cure for ALS.
NIH ALS Information Page: An educational resource provided by the NIH National Institute of Neurological Disorders & Stroke explaing amyotrophic lateral sclerosis and listing resources.